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I've been thinking about her all day. That blog of her dad's is so very eloquently written, and very honest. It's wonderful that her parents care so much and have seemingly endless amounts of persistence. It sounds like they've adapted to whatever is consistent about Jani and have learned what works to get her through the day. Remarkable.
Makes me wonder though at any kids out there who were similarly born with an illness like this (or it at least set in so young), but did not have the parents/opportunities to be properly diagnosed and cared for.
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